Sign in

Welcome to #ForeverKenzieStrong

ForeverKenzieStrong

ForeverKenzieStrong

Mackenzie Rose was a healthy baby until she was diagnosed with a rare, aggressive brain tumor known as Atypical Teratoid Rhaboid Tumor in March of 2016 at 8 months old. The tumor had blocked the flow of spinal fluid, so her symptoms included hydrocephalus with head swelling, balance issues, and vomiting. Kenzie underwent 10 surgeries (9 to her developing brain). She suffered multiple setbacks with 3 shunt infections in the span of 4 months. Unfortunately her treatment for the cancer was delayed with each of these complications. In July, we received a miracle. Her MRI after just 2 cycles of chemotherapy showed no evidence of disease. She progressed beautifully and began regaining lost milestones. We continues with 2 additional cycles and planned for proton beam radiation over the fall. The next MRI before radiation showed that the tumor was refractory, otherwise known as chemotherapy resistant. The radiation oncologist refused to radiate her developing body due to the devastating side effects. On October 13th we were told to enjoy what time we had left with our baby. She decompensated with hydrocephalus again by the end of that month and required her 10th surgery. We were enrolled in hospice and Kenzie rallied for about 2 weeks after Thanksgiving. However, with aggressive growth that surrounded her throat, she began to have difficulty breathing and passed a week before Christmas on December 18th, at just 17 months old. We were told there was no standard of care for her cancer and that just a few years before it had always been misdiagnosed. Our child was given less than 13% chance of survival and unfortunately the odds were not in her favor.

Thank you for your continued support, Kate, Andrew, and big sister Maddie

Christy Murrell
  • CMChristy Murrell
$39.99
$25.00
MD
$25.00
ML
$25.00
MP
$0.00

Comments

9 Fundraisers

recruited
Join Our Team
$254.98
raised of $2,500 goal
 

Recent Donations

$25.00
1. EElisa G
In honor of Elisa's birthday.
$25.00
2. John Lopez
$39.99
3. CMChristy Murrell
$25.00
4. MDMeghan Davis
$39.99
5. SSSuzanne Shelpman
$25.00
6. CHCynthia Hinton