Sean Marriott is 7-years-old
and the youngest of 3 children of Kelly Marriott and her ex-husband,
Chris. Sean with his brothers was enjoying the summer on a family
vacation at the beach, looking forward to returning to school in September. Today,
he is spending his time at Children's Hospital of Philadelphia (CHOP)
interacting with doctors rather than with his brothers and
friends. Kelly, a single mom, instead of enjoying the time with her
children, is facing a parent's worst nightmare, a child with cancer.
Receiving the news that your
child has been diagnosed with cancer is heartbreaking and frightening for any
parent as well as family and friends. Having a healthy child is something many
take for granted - until that one day when everything changes.
Like any other 7-year-old boy,
Sean is full of energy and knows just how to bring a smile to your face and
make you laugh with one of his many witty jokes. He was living a normal life
until one day he complained of blurry vision. Kelly and Chris as well as Sean's
pediatrician thought the blurry vision was a side-effect of a medication he
recently started… Until the condition got worse.
On July 9, 2018 Sean was sent
to the emergency room at CHOP. An MRI showed a brain tumor and panic set in...
Sean’s vision continued to deteriorate as pressure and fluid build-up from the
tumor altered his optic nerve. In the following days a biopsy was performed -
the results were devastating as he was diagnosed with Pineoblastoma, a rare and
aggressive brain cancer that typically occurs in children.
A few days later, Sean
underwent an eleven-hour surgery to remove the tumor. The surgery apparently
went well but due to the invasiveness of the tumor, Sean will need to be
treated with chemotherapy and radiation. For the next six months Sean will
receive a prolonged treatment of chemotherapy once each month, requiring a
one-week inpatient stay each time followed by radiation and possibly proton
Sean is currently at home in Pennsylvania with his mom, Kelly,
recovering from his surgery but is unfortunately faced with yet another
struggle, he has lost all of his vision (which the family is told is most
probably temporary). On August 3rd, Sean was admitted to CHOP for another brain
surgery procedure. The spinal tap confirmed that the cancer did not
spread to the spinal column. It, however, did reveal that Sean had
elevated levels of fluid on the brain which is being treated. He
will begin his chemotherapy and radiology treatments on August 13th.
This diagnosis and treatment
protocol in the future months, if not longer, will be unbearably difficult,
stressful, scary and overwhelming for Sean’s mom, Kelly, who has two other
young boys to raise and care for.
Chris, although divorced from
Kelly, is still in the picture and will presumably do what he can to support
the family as they face this overwhelming challenge.
Kelly's dad, John
("Jack") Jackson and his wife Wanda, Sean's grandparents, are also
supportive and are doing what they can to help. Jack retired from
the U.S. Army in 1989 following a stellar 22- year career in the armed forces,
having served two tours of duty in Vietnam in the late 1960's and early 1970's
and having received two Bronze Stars for bravery in battle (and other medals
over the years). Despite being a seasoned combat veteran, Jack has
stated he, with his family, is now facing his greatest battle - to help his
grandson overcome the cancer that has infiltrated his 7-year old body. To learn
more how Jack served his country during his impressive 22-year career in the
Army, visit here:
The financial stress on
family's having a child with cancer is overwhelming - even though medical and
hospital expenses are generally covered by insurance. Sean's family is no
different. Please show your support and help alleviate some of the financial burden
by donating whatever you can (which results in a tax deduction for the amount
contributed) to The Max Cure Foundation’s Roar Beyond Barriers program on
behalf of Sean and his family.
We set an initial $30,000 goal
to cover some of the expenses that follows from this difficult journey - so
Kelly can focus on what really matters right now. Healing.
The Max Cure Foundation is a
national 501(c)(3) children's cancer charity. Its mission is to fund research
for the development of pediatric cancer drug therapies, including the discovery
of less toxic treatments for children with cancer; to financially assist
families battling cancer in their children; and to pursue legislative and
regulatory changes that seek to benefit children with cancer and at the same
time, raise awareness to the needs of those fighting pediatric cancers. For
more information please visit www.maxcure.org.
raised of 30k
SSSusan M Swain
Thinking of Sean and sending healing thoughts his way. And all good wishes for Sean's parents, grands, and sibs during this big challenge.
$1,000.00PSPete and Maril Sowa
Kelly, Sean, Tyler, Jack, Grandpa Jack, and Grandma Wanda,
Our thoughts and prayers are with you everyday.
May peace be with you all.
Aunt Maril and Uncle Pete
$500.00RKRob and Cynthia Kennedy
Jack, my thoughts and prayers are with you and your entire family. God's blessings and healing power be with Sean.
$100.00PKPeter and Susan Kiley
My thoughts and prayers are with you and your family.